Hi everyone,
Hope you are all well. I'm fine, but you will probably tell from reading my blog today that I am not my usual bubbly self.
Why is that you ask? Well, as you may have gathered from reading past posts, my eldest son Mark has Down's syndrome - he is a wonderful chap and Clive & I are extremley proud of everything he does and achieves and we love him to bits. But in the post today came an application to renew his Disability Living Allowance - *%@**&+++ Have a heart Dept. for Work & Pension - our life has not suddenly become a bed or roses you know - it's still bloody difficult and not likely to change as I don't think anybody has found a "cure" for Down's syndrome yet! So why do you need me to tell you all about it yet again????
Filling in those horrid forms just makes me so miserable as I have to write all of the things down that Mark can't do! Reality check or what!
Apart from those bloody forms, we have had to fight his corner all of his life. If he did not have us to do this for him, I dread to think what would happen to him. He is 20 next year and we have had to spend 20 years with one battle or another be it from health to education.
Do you know, in November 2006 I started the ball rolling to get things set in place for him for when he left school. Here we are, November 2008 and I am still trying to get everything sorted for him! He left school in July 2007 for heavens sake!
To get a Social Worker was a battle in itself and I think I deserve a bloody medal for achieving that alone! Thankfully, the Social Worker Mark has now (Jo Jobson) is the best thing since sliced bread! - Yes, honestly, I am talking about a Social Worker here!!!! I don't think I could cope anymore without her, she really is a breath of fresh air.
Oh I must shut up - I'm sure nobody is in the slightest bit interested in my problems! The thing is, Mark is not a problem - he has a huge sense of humour and as I said, we love him to bits - but Government departments seem to want to make life as difficult as possible for the Carers in this world and make us miserable.
If I didn't have a thumping headache today I might have felt a bit happier, but writing it in a blog has "got it off my chest" so to speak.
I'm off to bed now and am sure I will wake up my normal self in the morning.
Thanks for listening!
Kathryn
xxx
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2 comments:
Hi Kathryn,
I really feel for you - I've had personal experience of those forms and they have got to be one of the most depressing things ever to complete. Having to making a detailed list of all the things your child can't do is utterly miserable. Life is so much better for all concerned when we do what we do best as parents and focus on all the wonderful things they CAN do. Chin up - I hope you feel better in the morning and you're back to your normal bubbly self.
Angela xx
Thank you Angela. I feel much better today - the form is all completed so I can move on again now!
Kathryn
x
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